Tuesday, December 29, 2009
Carried...exactly how I would describe our Christmas this year. Let me rewind. Price had his 15 month check-up about 3 weeks ago and our doctor was less than impressed with his developmental progress. He suggested we see our pediatric neurologist once again and made a phone call. We were able to get in to see him within four days which is pretty much unheard of at Texas Children's. Our neurologist was also less than impressed with Price's progress and reviewed all of his previous imaging and testing results with us. He agreed with us that Price is about 6 months old developmentally, which is a pretty big delay considering he is 16 months old today. He suggested that we start digging deeper into what might be causing Price to lag so far behind. He decided to go ahead with a couple of genetic tests that day and then wants us to consult with a geneticist in the near future.
My heart sank...a genetic condition? Not my Pricey. Not my sweet, laid-back, beautiful boy. Nathan and I checked out at the neurology desk and proceeded to the lab downstairs to have Price's blood drawn. My brain is in such a fog as I start googling the conditions he is being tested for. Conditions that would radically alter our lives and most importantly, Price's life. Conditions that made my heart just ache like it has never ached before. We are told that it would be approximately 2 1/2 weeks until we would hear the results. I immediately think about the next two weeks - Christmas, traveling to see our relatives - joyous times that I look so forward to every year. How would I survive this Christmas season?
Nathan and I headed home and sat in silence for most of the car ride. Price was in the back seat asleep and traumatized as it took the nurses about 45 minutes to draw blood from his little fat arms. He is asleep and oblivious to the sadness that is overwhelming his daddy and I.
You know what though? Christmas WAS joyous, and maybe even more so this year than in the past. I treasured every minute of it, spending extra time kissing on the kids, celebrating every small victory Price has made during his 16 months of life. Christmas was joyous because of what it means - that Christ came as a baby in a manger on that day in Bethlehem. That Christ came to save the world from our sins. That Christ came to one day have a relationship with me. That Christ came to carry me through life when I just didn't feel like and couldn't walk on my own.
This Christmas I was carried by the Lord. I felt his peace, his love, and his closeness. Some days I wanted to curl up in a ball and hide from the world, but He got us through it. One day at a time.
Today we got the call from our neurologist that Price's testing came back negative. Nathan and I just hugged and I shed some tears. We know there are more tests that will be run and that there will be more waiting. But, I am confident that the Lord will be faithful to carry us once again. And while we are praying for Price's complete healing, we know that His plans for Price are perfect in every way.
Monday, December 7, 2009
Saturday, December 5, 2009
Thursday, November 19, 2009
I am thankful for my family, Jesus, and my friends.
I am thankful for my family because they love me.
I am thankful for going to Bevo games!
That last one just threw me for a loop. She's so funny! She sure does love going to the games though, and this weekend will be our last one for awhile!
Thursday, November 5, 2009
Monday, November 2, 2009
Our new neighborhood is famous for it's Halloween. When we moved in, it was one of the first things our neighbors talked to us about, saying it was a lot like Mardi Gras. They barricade the streets so that is a pretty safe place to be. Honestly, I was excited because after living in a gated community with no trick-or-treaters, I was ready for some action! We were not disappointed. It was definitely a fun night of meeting new neighbors. It was Ellery's first time to trick or treat and although she seemed to enjoy herself, I think she had more fun handing out candy to the hundreds of kids who came to our door. Tiffany, Emery, Price, Madi Kate, and I all set out on the porch most of the night. I bought 4 big bags of candy at Costco and still ran out! I will know to buy some more next year. At one point, a little boy came to the door with a scary mask on and Tiffany caught Ellery saying under her breath, "I'm not scared, I'm not scared."
Oh, and to top of the weekend, Nathan took Ellery to see the muscial Mary Poppins on Sunday night. This makes me so happy because I so clearly remember doing the same thing with my sister and dad growing up. Ellery told me this morning that she liked Mary Poppins better than the Wiggles or Dora - pretty big statement! They had to leave at intermission because Ellery was falling asleep in her chair. Sweet thing.
Wednesday, October 28, 2009
Tuesday, October 27, 2009
Everyone seems to be really loving and adjusting well to the new house and new rooms. Ellery is exploring her new surroundings and Price must have whip-lash from constantly watching all of the "workers" going in and out of the house. Colby is in doggy heaven with a new and upgraded backyard. He seriously looks like he is skipping through the grass, chasing butterflies and squirrels. He really does seem to have a new spring in his step.
What a blessing.
Tuesday, October 13, 2009
Saturday, October 3, 2009
Above pictures by Ellery...and then the camera went dead! I managed to get one of the actual race.
Thursday, October 1, 2009
For about a week he has been putting his lips together but not saying anything while doing it. While we were in speech today, a "ba" slipped out loud and clear. I was so excited, and I could see the excitement in his eyes as well. I hope I hear some more sometime soon. A "ma" would be really great too!
We WILL get there!
Monday, September 28, 2009
I was using my hair straightener to help fight the frizz at the game, and Ellery decided she wanted her hair straightened as well. It really did look pretty!
Ellery loved this pink truck and wanted a picture in front of it.
We headed back to Houston after half time so that we could get back for church on Sunday. The kids missed their afternoon naps so we were sure they would sleep the entire way home. Ellery fell asleep before we got out of Austin, but sweet Pricey managed to stay awake awhile. He has become a huge fan of the car dvd player, and he usually laughs his way through "The Little Mermaid" or "Annie" or some other very girly movie.
Saturday, September 26, 2009
Tuesday, September 22, 2009
Look at those lips
and look at that hair
Madi Kate driving the boat with Poppy
Check out my cool shirt Poppy bought me
These two slept in the same room together. They did pretty good although were so excited the first night that they didn't want to go to sleep. We finally heard Ellery tell Madi Kate, "Madi, I love you but I need my sleep."
Sunday, September 20, 2009
Mom: "We ate dinner and talked about how much we loved you and how proud of you we are."
Ellery: "And brother? What else did you talk about? Have I ever been to the place you ate?"
Mom: "Yes, and your brother of course. You two are my favorite. Yes, you've been to the place we ate at tonight. Ruggles. Remember? We also talked about how we want to obey God in everything."
Ellery: "Let me think. Oh yes, I remember eating there with Heidi. You have to obey God just like I have to obey Him."
Mom: "That's right punky."
Ellery: "Jesus lives in our hearts. He helps us when we are sad or scared."
Mom: "He sure does."
Ellery: "Some people do not have Jesus living in their hearts. Why?"
Mom: "You are right. That's why we need to tell everyone about Him."
Ellery: (pausing to think for a bit) "Well, how does Jesus get into their hearts?"
Mom: (impressed with the logical thinking that's going on and trying to come up with the best, most age appropriate answer FAST) "Well, all they have to do is ask. They can say, "Jesus, I believe and I need your help," and He will come live in their hearts."
Ellery: "Oh. They just have to ask. Jesus lives far away. We can't drive there or fly there, right? How do we get there?"
Mom: "You are right. When Jesus calls our name, He will take us to heaven."
Ellery: "Yes, when He calls our name."
Mom: "Do you know who lives in heaven with Jesus? Nanny does."
Ellery: "I miss Nanny."
Mom: "Me too, but we will see her again."
Ellery: "Yes, we will see her and see Jesus."