Saturday, December 10, 2011

China

3 months ago, the whole family is in the car taking Ellery to school, when Nathan blurts out, "I think I want to take Price to China."

Come to find out, he'd been praying and researching about a type of stem cell treatment that has had some success in helping patients with ataxia.

Umbilical cord stem cells. Ataxia: uncoordinated movement (in Price's case most likely due to cerebellum issues).

Yes, we have banked both boys cord blood but are unable to use it due to P's lack of diagnosis and inability to qualify for an FDA trial. Believe me, we have exhausted this avenue. Maybe at some point in the future.

Nathan and I prayed, skypped and talked with families all over the world. We waited for a red flag, a concern. We debated, what would P want?

This is not without risks. It's scary. But we believe it might be worth it.

Our tax return came back the highest ever this year. We rejoiced that it would help pay for treatment.

We prayed and prayed some more. We cried. We talked. We planned.

We are going. 30 days in China. 30 days of medical treatment, physical therapy, and so much more. 30 days of befriending people from all over the world who are in need of hope.

Yes, we hope that this treatment will offer P a better future. Not because we don't think he's perfect just as he is, because we do. But, because we want the world for him. We'd do anything. Go anywhere. To the ends of the earth. But, OUR hope is in the Lord. For, there can be no healing apart from Him.

Thanks for journeying with us. Definitely to be continued.

9 comments:

Amber C. said...

WOW!!! We will be praying for BIG things for you guys! You are such an inspiration.

cindy gatewood said...

Praying through every step of this
journey...so glad that even through
these difficult things, God chose
YOU TWO for Price.

Tabaitha said...

Praying for your family as you travel to China and embark on this journey.

Paige said...

Praying BIG things for all of you during this journey, and I couldn't agree with Mom more:)

shannonmichaelis said...

Oh my word we need to catch up!!!!!

Rachel said...

I have chills all over my body! We don't know each other, but I follow your blog and just love, love, love Price (and your family). I will be praying for your family. What a journey. What an opportunity. I LOVE what you say about wanting the world for him! God did not make a mistake when He created Price in your innermost being. He was fearfully and wonderfully made and then Divinely placed with 2 parents who would LITERALLY travel the world to give Him every opportunity to grow in wisdom and knowledge with God and man and to provide hope for other families who are struggling without the Peace that passes all understanding.
I am blown away.

Jill said...

Love you all! Can't wait to see you soon and hear more about it!

Lyndsay said...

Wow! Thoughts with your family during this time. Hoping and praying for you!

Win said...

There are no words to convey my happiness and excitement for Price and you guys. You are incredibly brave and educated to make such a choice. God speed! With love and great respect, I await more info!! Good Luck!!!!!!

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