Saturday, February 18, 2012

Homecoming

I really am going to sit down and write soon. We have had so much going on since the boys returned from China and it has taken us a little while to get back in the swing of things. Things were definitely simpler when Price was not here. There was more sleeping in and not rushing to therapy at 8am, there was one less school run, and one less (usually squealing) mouth to feed. Simpler, but not better. Definitely not better. We need our Price.

I didn't want to miss posting pictures from the boys' homecoming. I planned to take more, but well, I got caught up in the excitement of the moment.

Saying goodbye to Dr. Kevin
About to brave the big flight...what a daddy.
Ellery made 3 signs that were just so cute. I "loves" this one.
Seeing Ellery had to be Price's most favorite part. The look on his face was definitely priceless.
As for how Price is doing, all I can really say for now is that he looks "brighter". That doesn't mean much for someone who doesn't know him, but it means a lot to this mama. We have front row seats to this complex, yet so divinely orchestrated story of his. To Him be the glory.

{I read this blog post today by Greg Lucas about the community of disability. Awesome and encouraging. I love what it says about siblings being anything but typical.}

Friday, February 10, 2012

They're BACK!

Sorry I've been MIA, but the boys are back and it is sweet to have everyone home. Price has been all smiles, especially when I am serving some of his favorite foods.

He started back to school this week and will get back into therapy on Monday. We have been told that tons of therapy is the best thing we can do for him after receiving the stem cells.

So...have we noticed any improvements/changes? It's hard to tell. He's definitely doing more and doing it faster. Time will tell. The Lord will use the cells in His time and in His way. He's so good to us. The trip in itself was a miracle. We survived and even thrived. China was a blessing. We took away much more from that trip than we had expected. More to come...


Wednesday, February 1, 2012

Some pics

We are counting down the days until our boys get home. Price had his last stem cell injection at about 12:30am this morning. I don't sleep much the nights where I know they are on the other side of the earth in the operating room. Good news is that he did great.

Nathan texted me this picture about 2:30am. It's right after his lumbar puncture. I love this picture for so many reasons. One being the white Michael Jackson glove that Price has on his hand. Nathan crafted him the cool little glove out of a sock, to keep him from pulling out his IV.
This is a picture from the Jimo Road Market.
And because I don't want to leave out the other two, we had an adventure at the zoo this past Saturday. The jury is still out as to whether Street will be an electrician, engineer, or now a zookeeper. Seeing the zoo through his almost 16-month-old self was pretty awesome.
Aunt Meredith went with us. We are so thankful for her company this past month.

Saturday, January 28, 2012

Day 24

Woke up this morning and realized we needed some laundry action, so that meant only one thing...hotel, motel, Holiday Inn! (If you didn't get that, do yourself a favor and google Rapper's Delight. You're welcome.)

You know you've been somewhere a long time when you take a vacation from your "vacation". Since we're going to the Holiday Inn we of course make a day of it and hit up the very Western breakfast buffet, complete with pancakes and scrambled eggs. It's especially welcoming because all the staff knows us by now and they LOVE Price. He smiles = they all giggle. I'm waiting for a free meal out of the deal, but I guess it doesn't work that way over here. Once we're done with breakfast, we still have about 2 days to kill before we have to be back at the hospital, so what do you do In Qingdao when you've got all day to kill??? That's right, you walk to Walmart.

On the way we stop at the world's biggest empty shopping mall, a.k.a. the Powerlong Qingdao Super Mall. You can't fully understand it unless you see it with your own eyes, but pretend they built the Galleria and Memorial City and a couple other big malls all on top of one another and put an amusement park with a full-size roller coaster inside it and that will kind of give you an idea. Then also pretend it's 4 stories tall and 90% of the stores are empty. Very weird, very bizarre. But that's how the Chinese roll, built it huge, build it fast, and don't worry about it. Couple that one instance of excess development with the incalculable (here's to you Michael Scott) number of high rise condos that are halfway to completion and on hold, and you have yourself an nice little economic crisis on the horizon. That's China for you.

Price has been doing great. I mean, he was made for this kind of a trip. Price, I need you to go to this new place and sleep in this new bed and meet all these new people and eat this new food and do the same thing over and over again every day, and please don't complain. No problem. The guy is an adapting machine. He'll do whatever we ask him to, whenever we ask him to, just so long as we provide plenty of food and Blues Clues. And through it all he's had the best attitude anyone could expect from a 3 year-old little boy. He just loves life and brings joy to those around him. You're the man, Bro Bro.

Movie update, Holiday Inn version.

We've now spent a decent amount of time at the Holiday Inn and thoroughly enjoyed the free HBO. Here's some thoughts. Remember, don't judge a man until you've walked a mile in their shoes....

Megamind - Awesome.
Despicable Me - Also awesome.
Van Helsing - I'm sorry to say, it was not my first time to watch it in its entirety.
Honey - Watchable, barely.
Glitter - Tried but couldn't make it to the end. Mariah can sing, so that's good.

In the midst of all this mindless movie-watching, I am reading a really deep book on apologetics by William Lane Craig. The fact that I can watch about 3 movies with same brain power it takes to read 1 chapter of his book should tell me something. I wish movie comprehension had been a section on the SAT. Once I finish it, I'm going to read the book on Seal Team Six my friend from the U.K. left me before he went home yesterday. I told him he had to read Unbroken and Lone Survivor.


Snow Bai, our waitress at the Holiday Inn. She loves P and he likes her too.
Our trip to Walmart. P fell asleep on the way home.
Proud of himself for putting the lid on water bottle
Watching Blue's
Splashing in the itty bitty tub
Powerlong Mall...I think they should put one of these in front of Memorial City
Roller coaster and amusement park
The moats and boats. Smells like a Chinese sewer. Ugh.

Thursday, January 26, 2012

Blue skies and clues

**News on the home front is that we had quite an exciting last night. We had a security system installed and something happened in the middle of the night that caused the panic alarm to randomly go off. It is not a siren, and instead just a couple of beeps. Thinking it was just the new system acting up, I turned it off, and went back to sleep. About 10 minutes later, police were banging on my door and flashing their lights into my dining room window. I was half asleep and confused as they came in to check the place out, since I could have been under attack. I would have really appreciated that had that been the case. Next thing I know, the firetruck pulls up and they tell me the ambulance is right behind them. Too bad Street wasn't up. The fire truck would have rocked his world. Nathan's sister, who is spending the nights with us, thought one of the firemen was pretty handsome. Maybe we should get some cookies to the fire station as a thank you and see if he's single?

Now to Nathan's update...


I saw my first blue sky today since we got to China. They're not exactly into the clean air movement over here. To my point, I looked at the weather on my phone the other day and the current conditions were "smoke"... never seen that one before. But it's weird because they are very big into conserving electricity, so much so that they turn off most of the lights in the hospital at night. Makes things a little spooky but you get used to it. Another oddity of the Chinese hospital, family members of patients many times will sleep on the floor in the hallways instead of at a hotel. And here's the kicker...they make them pay to sleep on the floor!! Gotta pay the bills somehow, right?

The Chinese New Year celebration continues. I almost don't even notice all the explosions going off any more. These Chinese people love them some fireworks. Best part of the holiday so far for me and Price was the home made dumplings one of the translator's mom and grandmother sent us. Home cooking is the best even in China.

Price threw the biggest tantrum of his life last night. His little brother would have been proud. It was pretty impressive, the nurse even came to our room to see if he was okay. I told her everything was fine, except I had to say it a few times because she couldn't hear me over the screaming. Like I said, pretty impressive. (I'm not sure exactly what set him off, but it had something to do with his Blue's Clues DVD not working. It's a love/hate relationship with Blues Clues, really). So what do you do when your 3 year old is losing their mind and it's close to bedtime??? You get them in their PJ's as fast as humanly possible and get them in bed. Since he was already blowing the roof off the place and it takes 20 minutes for the water to get warm in the bathroom, I decided to skip bath time, but I did go ahead and wash his hands and brush his teeth. Let me tell you how much he loved that. By this point he was almost spent but he was still doing that involuntary sniff jerk motion in between breaths they do when their running out of steam. I stuffed a pacifier in his mouth and turned off all the lights and waited for the end to come. There was some faint moaning for a little while, but he didn't last long. I was actually kind of proud of him for putting on such a show. We said we were hoping he would do at least one new thing as a result of us coming here. Well, not exactly what we were going for, but hey, we'll take it.

Don't worry, Price was back to his usual smiley self this morning. Praise the Lord.

Sunday, January 22, 2012

Chinese New Year

It's Chinese New Year's Day. It's like the 4th of July but way colder and with way more fireworks. It's one of 2 days a year anyone in the country is allowed to shoot off fireworks so they take full advantage. It's like a celebratory Shock and Awe. I now have a better understanding of what it sounds like to be in those places you see on CNN with all the explosions going off in the background behind the reporter. .

Price did great on the recovery after his most recent lumbar puncture. That's 3 down 1 to go. Everybody keeps asking if he's doing anything new, you know, like are the stem cells working. It's hard for me to say how much he's changed because the changes are probably subtle, and I've been with him every waking minute these past couple of weeks. But, that being said, his new tricks include crawling in and out of his stroller and, my favorite, he now manages to take his pants off in his bed every night. Now when I say to him. "Price, keep your pants on," I literally mean, keep your pants on.

There's a market here that would make a even the most ardent Shopaholics head spin. It's like the Galleria on steroids. And it's ridiculously cheap. Shopping is not really my thing, and it's definitely not Price's thing, but even we we've been compelled to go in there a couple times and do some damage. There's a secret store under lock and key that sells swords that a guy is supposed to help us get into so I'm looking forward to that. Our Scottish friend got a little carried away in there and ended up with a small armory. William Wallace would be proud.

There's been a lot of down time in China and I'd like to say that I've been reading lots of enlightening books, but that's just not the case. Left to my own devices, I'm much more of a movie guy. I guess I'm just like the rest of America...addicted to moving images and voices from a screen. That being the case, here's a list of my 10 favorites so far....

1. The Warrior. Awesome even for non-UFC posers.
2. Master and Commander: The Far Side of the World. Russel Crowe sounds really cool as a British navy captain.
3. Fargo. First time to see it. A little rough but the lady that plays the pregnant sheriff was amazing.
4. Body of Lies. Seen it before a couple of times but I'm a sucker for espionage thrillers. Again, Russell Crowe is 2 legit to quit.
5. Ocean's 11, 12 & 13. All three are very entertaining. I actually like the 3rd one the best.
6. Hanna. Meh.
7. Margin Call. Pretty good but just because I like Paul Bettany and Kevin Spacey.
8. The Rise off the Planet of the Apes. Half decent.
9. Moneyball. My Ipad's video crashed about halfway through, but I was really liking it. I thought Ipads weren't supposed to crash???
10. Puncture. More technical difficulties. I started it and didn't finish it within 24 hours so it got erased off my Ipad. Thanks again, Apple. I really wanted to know the ending but I'm not forking over another $3.99 to find out.

Price's two favorite nurses, Lucy and April
Price or Darth Vader? Stimulating the vocal cords. Ellery liked this one.
Price's buddy Collin
Taking his pants off...again
Nurses and translators hosting the New Years dinner
Learning how to make dumplings
The feast

Tuesday, January 17, 2012

Update from China

China is now a full-blown guys trip. Price and I are perfect roomates because we both like to eat lots of snacks and watch tons of movies. Fortunately for me, Price can watch the same 6 episodes of Blues Clues 20+ times and still laugh at the same parts every time. May God bless Steve Burns and his green-striped shirt. For those who know Blues Clues, you'll be glad to know Price is a Steve fan all the way,he's not big on Joe. He's a purist. When Steve goes off to college Price loses interest real fast. Outside the room, Price is a crawling machine. There are lots of long hallways in our wing of the hospital and Price goes up and down them non-stop. And of course there's a staircase in the lobby that he climbs and descends as many times as I'll let him. The floor above us is all Chinese patients and their parents so it's kind of an international trip for him. When he gets to the top there's usually a few Chinese moms who cheer for him and try to pick him up but he laughs and shakes his head and puts it in reverse and scoots away from them. He thinks it's hilarious. Needless to say, Price loves all the attention and everybody loves Price. Price has also figured out how to go down the stairs feet first, which is much less hazardous to his forehead.

The most pleasant surprise of the trip so far has been the relationships we've been able to form with the medical and other patients. The doctors and nurses and translators have all been awesome, making us feel right at home since we got here. It's a much different experience than you get in the States in that you get to see and talk to the doctors everyday, sometimes even several times a day. They are constantly checking in to see how we're doing and readily available if we need anything. The nurses travel in packs. They usually visit 3 at a time, and they love to sing to Pricey, especially when he smiles and laughs. You can tell all the medical staff really cares about the patients, and that makes us a lot more comfortable about being here. The translators are awesome. Without them we would be hopelessly lost.

There's an older couple here from Canada that we've been tagging along with some. They run a grain farm back in Saskatchewan and sell most of their grain to the Chinese. And they end almost every sentence with "eh?" Very Canadian and really neat people. There was a Scottish couple arguing over how to turn on the Xbox the other night which made for some interesting theater. I'm pretty sure they were speaking English but I have no idea what they were saying.
- Nathan
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