Saturday, December 24, 2011

Merry Christmas!


For unto you is born this day in the city of David a Savior, who is Christ the Lord.
Luke 2:11

Friday, December 23, 2011

Acceptance-with-joy


Ellery woke up this morning and declared, "I'm so glad I have two brothers. And that one of them is extra special. Brothers are the best. I could have had sisters but I get to have brothers!" She then proceeded to jump all over the couch and slide down the makeshift slide she had created as both of her little brothers watched in awe and then eagerly followed in her footsteps. It was one of those moments where I really took in all that she had so joyfully uttered and thought to myself that I'm so very blessed. I also thought to myself that this is the thankfulness and joy the Lord desires from my own heart. Thankful for every blessing, every struggle, every pain, every joy because they all ultimately bring me closer to Him.

Christmas time has been hard for us the past couple of years. The first year, we were awaiting some pretty intense genetic testing results for Price, and then this last year we had been hit with the devastating news that the neurologist wanted to test him for degenerative conditions after a not-so-stellar MRI. We spent most of the holidays waiting for a phone call.

This year we are in a much different position, but waiting nonetheless. We are preparing our family for a trip to China. Our family will be apart for over a month. I have no idea of what to expect or the emotions I will feel knowing that for some of that time my boy will be having medical procedures done without me by his side. Or how much I will miss my "bookends" while I am on the other side of the earth.

I do know that this Christmas season, I am truly at a place of acceptance-with-joy. I accept with joy the life the Lord has planned for Price, whatever it may look like. I accept-with-joy the possibility that stem cells won't do a single thing. I accept-with-joy that this trip could be for some completely other reason than for Price. We do know that the Lord has illuminated this next step in our journey and so, like my daughter, I want to have a heart that overflows with thankfulness and joy at what the Lord desires to do in China.

{Nevertheless, OBVIOUSLY we are praying for the Lord to use this trip to bring healing to our boy. I think I will post the list of specific prayer requests we are giving to our friends and family. We would be grateful for your prayers for our family.}

Monday, December 19, 2011

This boy





is 14 months old already
has started climbing and jumping
shakes his head for no and for yes...it's a pretty funny sight
does the happy feet dance when he's frustrated
loves itsy bitsy spider and doing the hand motions
calls lulu "wuwu"
airplanes, birds, trucks, vacuum cleaners, dogs, squirrels...a few of his favorite things
loves to put his hands over his eyes and then shout, "Boo"
says the sweetest "bye bye"
gets into everything and then some
likes to back into things and go in reverse
is so goofy and makes everyone laugh
takes a bite of his snack then offers some to his "bro bro"
is always wanting to eat
loves to throw away trash and "clean"
woke up with a black eye this morning...a fight with his bed maybe?

Thursday, December 15, 2011

Pictures with Pipes (and Lulu and Poppy)














Goodlight Photography

Tuesday, December 13, 2011

Our favorite chicken

I usually make this once a week. It is a hit with everyone!

3 pounds of chicken (either breast or thigh)
1/2 cup flour, gluten free
1 tsp natural salt
1 tsp paprika
1/4 tsp sage
1/4 tsp ground black pepper
1/2 cup of unsalted butter

Preheat oven to 375 degrees. Mix the flour, salt, paprika, sage, and pepper together and put in a plastic bag. Add the meat to the bag and shake until well coated. Melt butter in a 9x13 baking dish in the preheated oven. Place coated meat in baking dish and bake for 15-20 minutes on each side.

Enjoy!

Saturday, December 10, 2011

China

3 months ago, the whole family is in the car taking Ellery to school, when Nathan blurts out, "I think I want to take Price to China."

Come to find out, he'd been praying and researching about a type of stem cell treatment that has had some success in helping patients with ataxia.

Umbilical cord stem cells. Ataxia: uncoordinated movement (in Price's case most likely due to cerebellum issues).

Yes, we have banked both boys cord blood but are unable to use it due to P's lack of diagnosis and inability to qualify for an FDA trial. Believe me, we have exhausted this avenue. Maybe at some point in the future.

Nathan and I prayed, skypped and talked with families all over the world. We waited for a red flag, a concern. We debated, what would P want?

This is not without risks. It's scary. But we believe it might be worth it.

Our tax return came back the highest ever this year. We rejoiced that it would help pay for treatment.

We prayed and prayed some more. We cried. We talked. We planned.

We are going. 30 days in China. 30 days of medical treatment, physical therapy, and so much more. 30 days of befriending people from all over the world who are in need of hope.

Yes, we hope that this treatment will offer P a better future. Not because we don't think he's perfect just as he is, because we do. But, because we want the world for him. We'd do anything. Go anywhere. To the ends of the earth. But, OUR hope is in the Lord. For, there can be no healing apart from Him.

Thanks for journeying with us. Definitely to be continued.

Tuesday, December 6, 2011

Trip NYC

Nathan and I just returned home from a fantastic trip to New York City with some good friends. We hadn't been away, just the two of us, in, well..I can't really remember. One of the couples that went with us lived in NYC for awhile and so they planned our jam-packed itinerary. We lived it up like true New Yorkers, riding the subway everywhere, eating street meat (well, some of us did...I opted for the pretzel), and staying in a room that was the size of my mom's closet. It was awesome.

The Brooklyn tabernacle worship on Sunday. It's truly like a little glimpse of what I imagine heaven to be like. There was not one empty seat (this picture was taken early), and I think the floor was literally moving with all the praising, dancing, and clapping going on. I loved being in the minority and was only a little disappointed that we didn't get to hear Jim Cymbala.
We visited the 9/11 memorials. What a humbling sight. The pregnant women who died that day had their name on the memorial along with "and her unborn child". That really stuck with me. Every life lost that day was so precious, including those unborn children.
Another view of the memorial
Our night out on Broadway
Random picture but the only one I have of the two of us.
Random bathroom picture
Brooklyn Bridge...we walked the bridge. Glad I did it, but didn't love it. They were spray painting, so the fumes plus the height didn't go so well for me.
Riding the subway with Melissa
Macy's store front

Every meal we ate was outstanding and the fact that it included no screaming children made it even that much more enjoyable. What a blessing to get away, have our kids well taken care of by so many at home, and recharge. I was so ready to return home Sunday night...there's really no place like home.

On our return flight I couldn't help but think about the hugeness (is that a word?) of the next trip we will be taking. This time it is literally on the other end of the earth. Destination China. And no, it's not to pick up a child (although Lord willing, that might happen one day).
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