Monday, August 30, 2010

Words

I have met so many moms at therapy and most of them are as nice as can be. Some of them have children who are just there for speech therapy or physical therapy, and then there are moms like me whose little ones are in speech, occupational, and physical therapy...all three. I have shed tears with a few of the moms and for the most part enjoyed getting to know families who are walking through similar circumstances.

All that to say, it has mostly been a positive experience even though I would much rather be doing other things with our time. Today though, one of the moms caught me completely off guard. I am sure she was just trying to make conversation and didn't really THINK about what was coming out of her mouth, but I have replayed the conversation in my head a hundred times and wish I would have said something.

She was asking me about my pregnancy...how much further, did we plan it, etc. etc. The truth is that this pregnancy was not planned. It was an unexpected blessing. So this mom said to me, "Well aren't you glad you got pregnant? I mean, Price is special needs. He might be special needs his entire life. Don't you owe it to Ellery to give her a normal little brother or sister?"

I was stunned, shocked, completely taken off guard. I think my mouth was wide open as I just stared at her. I didn't really respond. I think I just went back to reading the magazine that was in my hand.

I have never really thought of Price as special needs, but really he is. He has special needs. And yes, he may have them his entire life. It is a possibility although I am believing the Lord to heal him completely and have the faith that He will do it. And Ellery deserving a "normal" sibling? What is normal may I ask? And no, as a matter of fact, Price IS the perfect little brother for Ellery because that was the Lord's design for our family.


I was shocked and slightly disgusted more than anything but tonight when I was telling Nathan about the conversation, my emotions got the best of me. As the four of us were playing/talking in the EMPTY baby room tonight, however, the Lord gave me a sweet glimpse of my family. We had gotten out an old tunnel of Ellery's and I watched as Ellery and Price interacted together. No, it was not in the typical way that a 2 year old and a 4 year old would play, but it was in their own unique and perfect-to-me way.

Sunday, August 29, 2010

Birthdays

Saturday morning I woke up to a few missed calls and texts from my mom and sister. Paige had been at the hospital since 2:30am and baby Piper would be making her appearance by noon the doctor suspected. I got really excited and did a little screaming while I quickly packed us all up. Ellery was super excited too and at first thought that OUR baby was coming.
We made our way to the hospital and got there about 2 hours after baby Piper was born. She is a beauty. The darkest black hair I have ever seen and peaceful and sweet as ever. The Lord has really had His hand on Paige's pregnancy and this little girl! We are so thankful.
Piper was born one day before Price's birthday! We woke up this morning singing to him and loving on our 2 year old! I was determined that it would be a sweet, sweet day and that there would be no tears or reminding myself of what a typical 2 year old should be doing. It was a day of celebrating Price for who he is and where he is at. I was planning a family party for him tonight but that had to be postponed. Since Nathan's parents had made a trip to Houston for the party, we met them on the road on our way back to Houston and their way back to Dallas. We did some celebrating at DQ and we decided to let Price have some vanilla soft serve. We haven't purposefully cheated on his gluten/casein free diet ever but for some reason, it just felt like the right thing to do. And he was in heaven!

snoozing...check out the shiner!


this tastes so familiar to me...oh wait, I think my mom ate this a lot while I was in her tummy
(and I did...craved ice cream with this little guy)

Price, you are my sunshine
My only sunshine
You make me happy when skies are gray
You'll never know dear how much I love you
So please don't take my sunshine away.

I sang this to Price moments after he was born and still sing it to him today (that is when he will let me rock him). Happy 2nd birthday Price! You are a JOY and our sunshine!

Tuesday, August 24, 2010

TOMS for everyone







Saturday, August 21, 2010

The incredible brain

Not many people know this about me, but before I got pregnant with Ellery I had gone back to school to get my PhD in counseling psychology. I was a year into the program and interviewing for internships for the next year. The internship I really wanted (and ended up getting) was one at Texas Childrens Hospital in the neurology department. I was (and still am) fascinated with the brain and how it works, specifically in children because their brains are so malleable.
The minute I fell in love with Ellery Paige though, school took a backseat and I quit to be a stay-at-home mom. I have never once regretted that decision.

I never imagined I would be back in the neurology department at Texas Childrens with my own child. I would have much rather been there as an intern.

All this to say, I still enjoy reading about the brain and neurology. It is my pleasure reading, which makes no sense to Nathan. He's always telling me to read something a little lighter! Now that we have Price, my desire to know more and more has only increased. One of his therapists told me I should be a neurologist, but I told her I would only know really well one condition...my sons!

Two books that I have read in the past couple of weeks have really inspired me in different ways. The first was LeAnn Whiffen's "A Child's Journey Out of Autism." She is a mother-warrior who fought in so many ways to rescue her son. It shows just how impressionable a child's brain can be and how we can retrain the brain and make new, more functional neural pathways with the right work. While Price has not been diagnosed with autism, there are some overlaps with his delays and kids on the autism spectrum. Price also has some sensory issues which are often times found in children with autism.

The second book I just finished reading is called "Fixing My Gaze" by Susan R. Barry. The author is a 50 year-old neuroscientist who had vision problems her entire life. She viewed the world as flat and could not see in 3D. She began an intense vision therapy program and now sees the world as the majority of the population. This really stood out to me because it shows us that the brain is not only malleable during a specific period of childhood like many believe. Our brain can be rewired at any point in our life, given the right tools.

I keep praying for the "right tools" for Price. I do not want to ever look back and think we did not do enough for him. As his mom, I will keep fighting for his development and progress with everything in me, although at times I want to just throw in the towel. But more than the "right tools", we most importantly believe that the Lord is the ultimate healer. Nothing is impossible for Him. Please Lord, if it would bring you much glory, heal our Price.

Wednesday, August 18, 2010

Cake for Poppy

Ellery insisted on making a cake for Poppy so we went to the store and picked out exactly what she was envisioning. Of course, there were no Star Wars decorations at the grocery store so we settled for sprinkles and candles.

Speaking of cakes, did you know that Betty Crocker makes a gluten free cake mix? This will come in handy for Price's upcoming birthday. I will just have to use a vegan butter stick and make my own frosting. Sounds yummy, right?

Edited to add:
This is how the cake turned out...she decided her Star Wars figurines would make the perfect decorations.

Friday, August 13, 2010

Two-a-days

Price will be in therapy 17 hours a week starting on Monday. I have to admit I am overwhelmed but at the same time excited for him. 10 of those hours will be in-home therapy which will be a relief to me and probably Ellery too. She's such a trooper...a summer full of therapy. Don't feel too sorry for her though because she spent the morning with Lulu a couple days ago and was treated to a pedicure and manicure as well as a trip to the toy store.

I was making out a little calendar for our family so that we will all be on the same page and it reminded me of college, making out my class schedule calendar. Wow, this season of life is much tougher. I told Nathan that Price is already doing football two-a-days.

I am not sure how this baby is going to get fed or clothed or loved on with all that we've got going on, but I am positive he/she will. Ellery was singing a Psalty song this morning that totally ministered to my heart. Something like, "Do my best, do my best, as Jesus as my strength I'll do my best and he'll do the rest."

"Be joyful in hope, patient in affliction, and faithful in prayer." Romans 12:12

Monday, August 9, 2010

Monday thoughts

1. We had a great weekend in Austin with my dear college friend Jody, her husband, and her three girls. Ellery loved having two playmates.
2. We have an evaluation scheduled for Price tomorrow. We are looking into more therapy for him.
3. I worry that we are not doing enough for Price and then I think how could we be doing more? Our life revolves around his therapy schedule. I just don't want to miss the early intervention window.
4. I had a really great conversation with a mom at therapy. The Lord really used our situation with baby #3 to speak into her life. It was one of those moments where I was amazed at God's perfect orchestration of my life and our circumstances. (thanks AJ)
5. I really do not like losing things. A couple of things have disappeared around our house and it annoys me. I think my daughter might be taking after me. Why is it such a big deal?
6. I think I am going to order Ellery a Princess Leia costume for Halloween. Last year I ordered early out of fear the costumes would be gone and she changed her mind. I am pretty positive she will NOT change her mind this time and we are safe.
7. I was able to witness the miracle of birth last week as my good friend, Tiffany, had her baby boy. It was truly amazing...there is nothing like it. Speechless.
8. I can't believe this baby will be here in 8 weeks. I have just started getting a room put together.
9. Some friends from our sunday school named their little girl Charly. Should we keep the name if it's a girl? I don't want to be a copycat. And I definitely want something original. Hmmmmm.
10. What if we have another boy and his development is right on track. Will Price be compared to him? What will he think growing up? I keep praying he will catch right up and this will be a non-issue, but it does concern me a little.
11. Oh, and Ellery reverted back to her old pooping ways last week. She went 5 days and you better believe I was so nervous. I did NOT want to go back there. Never again. Thankfully, she is back on track this week. Phew.

Deep Monday thoughts.

Thursday, August 5, 2010

Occupational therapy


...is definitely Price's favorite. There is lots of swinging, playing in balls and sand, and riding on "horses". It's a lot of fun but also a lot of work for our boy!
newer older home