**I debated on posting this. It's sometimes hard for me to discern what to share publically and what not to. I have no problem discussing our lives with others face-to-face, but blogging is different. I guess it came down to the fact that THIS is what is going on in our lives right now, and if I didn't write about this, I don't know exactly what I would write about. I also believe in the power of prayer and it means the world to us to know that people are praying for our boy.
Carried...exactly how I would describe our Christmas this year. Let me rewind. Price had his 15 month check-up about 3 weeks ago and our doctor was less than impressed with his developmental progress. He suggested we see our pediatric neurologist once again and made a phone call. We were able to get in to see him within four days which is pretty much unheard of at Texas Children's. Our neurologist was also less than impressed with Price's progress and reviewed all of his previous imaging and testing results with us. He agreed with us that Price is about 6 months old developmentally, which is a pretty big delay considering he is 16 months old today. He suggested that we start digging deeper into what might be causing Price to lag so far behind. He decided to go ahead with a couple of genetic tests that day and then wants us to consult with a geneticist in the near future.
My heart sank...a genetic condition? Not my Pricey. Not my sweet, laid-back, beautiful boy. Nathan and I checked out at the neurology desk and proceeded to the lab downstairs to have Price's blood drawn. My brain is in such a fog as I start googling the conditions he is being tested for. Conditions that would radically alter our lives and most importantly, Price's life. Conditions that made my heart just ache like it has never ached before. We are told that it would be approximately 2 1/2 weeks until we would hear the results. I immediately think about the next two weeks - Christmas, traveling to see our relatives - joyous times that I look so forward to every year. How would I survive this Christmas season?
Nathan and I headed home and sat in silence for most of the car ride. Price was in the back seat asleep and traumatized as it took the nurses about 45 minutes to draw blood from his little fat arms. He is asleep and oblivious to the sadness that is overwhelming his daddy and I.
You know what though? Christmas WAS joyous, and maybe even more so this year than in the past. I treasured every minute of it, spending extra time kissing on the kids, celebrating every small victory Price has made during his 16 months of life. Christmas was joyous because of what it means - that Christ came as a baby in a manger on that day in Bethlehem. That Christ came to save the world from our sins. That Christ came to one day have a relationship with me. That Christ came to carry me through life when I just didn't feel like and couldn't walk on my own.
This Christmas I was carried by the Lord. I felt his peace, his love, and his closeness. Some days I wanted to curl up in a ball and hide from the world, but He got us through it. One day at a time.
Today we got the call from our neurologist that Price's testing came back negative. Nathan and I just hugged and I shed some tears. We know there are more tests that will be run and that there will be more waiting. But, I am confident that the Lord will be faithful to carry us once again. And while we are praying for Price's complete healing, we know that His plans for Price are perfect in every way.
Tuesday, December 29, 2009
As you can see from these pictures, Price was really not into Santa this year. He looked at Santa, then looked at Ellery for reassurance, and then finally his bottom lip came out as he started to get upset.
Ellery asked Santa for an outdoor playset and a doll. She is still a Santa-skeptic, as she was asking me why the reindeer were not with Santa and why his beard didn't look real.
I was thinking that if I could sit on Santa's lap and give him my Christmas wish, I wouldn't even have to hesitate. All I want for Christmas is for my precious baby boy to start crawling, walking, and talking.
Thankfully, I have some one better to ask than Santa. I can go before the throne of God and plead with Him to heal Price. He IS real and He alone can do more than we ask or imagine.
Posted by Kristen at 3:06 PM